My brain condition is a form of migraine with both known and unknown triggers, of which the most common is long-tube fluorescent lights. Please note that I cannot meet, work nor transit through spaces with long-tube fluorescent lights.
Fluorescent lights produce light by ionising mercury vapour using an electric current, creating short-wave ultraviolet light that makes the tube’s phosphor coating luminescent. The frequency at which fluorescent lights operate affects everyone’s brain to differing extents.
Because the impacts on my brain are at the extreme end, exposure triggers a response similar to epilepsy but sitting in fact on the migraine spectrum. Fluorescent lights – and most particularly, older long-tube fluoros with magnetic or electromagnetic ballasts – interfere with the functioning of my brain to such an extent that they cause some mixture of pain, confusion, impairment of judgement, impairment of vision, impairment of speech, momentary loss of consciousness, petit mal seizure, and ultimately, migraine which can last for days.
Thankfully, LED tubes and high-frequency fluoros are transforming my world for the better.
Avoiding long-tube fluorescent lights used to mean that I couldn’t catch public transport at night, or trains that go through tunnels and rob me of natural light, or visit supermarkets or convenience stores. In many places, I still can’t. It still means checking ahead whenever I visit any new place – for every meeting, every show, every venue, every hotel, every airport, every restaurant, every bar, every café, every social engagement, every home, every chore.
Not surprisingly, I am asked about this a lot. So here are some more details – starting with a table comparing brain waves with fluorescent light frequencies:
|Delta wave||Deep Stage 3 of non-rapid-eye-movement (NREM) sleep or slow-wave sleep (SWS)||0.1-3Hz|
|Theta wave||Irregular pattern in REM sleep or other active hippocampal activity||4-7Hz|
|Alpha wave||Wakeful relaxation with closed eyes||8-15Hz|
|Mu wave||Irregular pattern in the part of the brain that controls voluntary movement||7.5-12.5Hz|
|SMR wave||Oscillating, idle sensorimotor activity||12.5-15.5Hz|
|Beta wave||Normal waking consciousness||16-31Hz|
|Gamma wave||Oscillation pattern associated with consciousness and subjective awareness||32-100Hz|
|Fluorescent tube with magnetic ballast||Fluorescent lamps with magnetic ballast flicker at twice the frequency of the electrical supply||50-100Hz|
|Fluorescent tube with electromagnetic ballast||Improved modulation well above the frequency of the power supply||1,500Hz|
|T8 with high-frequency electronic ballast||Including microcontroller and digital ballasts which allow fast switching and sophisticated dimming||5-10,000Hz|
For me, the impact is to the brain, not the eyes: as you can see from the table, there’s an overlap between brainwave frequencies and the frequencies at which fluoros operate, especially the older ones. The impact is not about the brightness of their light, it’s about how these tubes produce light. And when fluorescents are switched on, the erratic blast they emit in the seconds it takes to reach their optimal frequency has a massive impact on my brain – like being exposed to them for over an hour.
Of course, all of this can be hard to explain and hard to understand. Astoundingly, even in today’s more understanding world when it comes to disability, there’ve been some absolute corker responses to accessibility enquiries. Two of my former EAs, the amazing Joanna Gould and Adelaide Fisher, have heard it all! At Regional Arts Victoria we had a particular example of the head of a cultural institution whose response has become the stuff of case studies: he refused to make accessibility modifications (switching the lights off in a room with abundant natural light), refused to meet me elsewhere (there was a café downstairs), and then on being told it wouldn’t be possible to meet under those circumstances, told Joanna that he’d keep the appointment in his calendar “and if Esther wants to turn up, she can.” Needless to say, we never met. (We have been kind enough to omit his name and the name of his organisation from our case studies.)
Joanna used to exclaim: “If you were in a wheelchair, would they expect you to bring your own ramp?!?” Even organisations who have known me for a decade or two forget about access far too often – not just about my requirements, but the need to have some kind of procedure for asking for, recording and acting upon accessibility needs. I do my best to remain patient, but far too often, it’s deeply disappointing and humiliating to have clear accessibility requirements ignored, or worse, to turn up to a meeting and find that the space is inaccessible, despite all the clarity at our end and confirmations at theirs.
At the Colac-Otway Performing Arts and Cultural Centre (or just plain COPACC to locals) back in 2016, I experienced the most superb example ever of easy accessibility modification. Not only had light switches been covered ahead of our arrival, and not only did the venue staffer brief us on access and egress including toilets, but even more amazingly, the room we’d booked had the most delightful improvised lighting I’d ever seen (pictured left). A simple and very cost-effective approach that not only made the space accessible, it made us all feel welcome.
Everyone’s brain is different. Whenever I’ve changed jobs and had lighting modifications undertaken (it’s so easy now – you just replace them with LED tubes, and it saves you so much on energy costs!), colleagues have remarked how much more comfortable they are, how many fewer headaches they go home with, how much clearer their eyes feel. Consider also that the operation of fluorescent lights in trams and trains is further disrupted by the irregularity of power through overhead contacts, affecting the brain in unexpected ways. Fluorescent lights have been associated with sleep disorders, immune deficiency, depression, hormonal imbalance, anxiety and stress.
Whenever you’re in a situation where you can control the lighting where you’re working, reading, thinking, moving or playing, do it: find what works best for you.
IMAGE: Older, large-diameter fluorescent tubes with magnetic ballasts. These are usually fitted in pairs in an attempt to minimise the effect of the flicker on the brain by complementing the frequencies. Attribution: “Fluorescent lamps artistic” by Flickr user Oimax. Image reviewed on 20 May 2007 by the FlickreviewR robot and was confirmed to be licensed under the terms of the cc-by-2.0. – Flickr. Licensed under CC BY 2.0 via Wikimedia Commons.